Applied Registries

Applied Registries focuses on creating intuitive registry software to help patient-focused non-profits collect the necessary data to advocate for their patients.

How does data help your patients?

Real-world data (RWD) is health related data that is collected outside of clinical trials. When purposefully collected, RWD becomes real-world evidence (RWE). Use RWE to help your patients justify the regulatory approval of novel therapies, continued reimbursement of effective treatments, or increased funding for research and development.

Health regulators around the world, including the FDA, Canada’s Drug Agency and EMA have published frameworks for RWE, so you know this means that RWD is important. Keep in mind that you need RWD to generate RWE.

In this new era of government budget constraints, it is vital for your organization to be data forward.

Am I changing my organization’s narrative?

Patient voices are still important.

You set the mission, we help you augment your patients’ voices with RWE.